Why is treatment not available on the NHS?

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​There is currently no NHS pathway for upright/dynamic imaging, assessment, or treatment, and therefore no access to appropriate care within the UK. This was recently highlight in Parliament at PMQs.

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 ​​If conservative measures such as physio, pain management and lifestyle changes have failed to work there are no other treatment options available.

 

Many people, like Maisie, have been left with debilitating symptoms, forced to go abroad at a huge cost to themselves and their families. Those who are financially less fortunate are resorting to fundraisers.

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Why does the cost of surgery keep alternating?

Maisie has been on the waiting list for private treatment in Spain for some time now. Unlike the National Health Service, private clinics work like a business, so prices often fluctuate. Because Maisie has been on the waiting for so long the Spanish hospital, out of good will, has kindly offered to reduce the cost of surgery to 45k. However we have been informed that hospital fees are predicted to increase in 2026. It is therefore vital that we raise the necessary funds quickly to meet our new target.

​It is also important to note that Maise might need a more extensive surgery, involving a longer fusion, as time drags on. Every day we delay treatment Maisie deteriorates, risking further irreversible neurological damage to her body, and inevitably larger medical bills.